Research Group for ME/CFS, Chronic Disease, Ageing and Cancer

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Messages - pfifedog

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Questions and Answers / Re: Starting Out and A Few questions
« on: December 29, 2021, 03:57:34 PM »
Also, where has everyone gone.   It seems this stopped being used in July.

Questions and Answers / Re: Starting Out and A Few questions
« on: December 24, 2021, 04:00:49 PM »
Another question I forgot to ask.

Can high dose vitamin C or Magneisum sulfate be substituted for Magnesium Oxide?

Questions and Answers / Starting Out and A Few questions
« on: December 24, 2021, 03:49:26 PM »

I have had ME/CFS at different levels over the last 25 years.  I currently went from my best health in 10 years (functional but still quite limited with PEM) to close to my worst (housebound to bedridden).  I am trying to digest all of this material with the limited energy I have.  Along the way, I have various questions that I will post here.   My main concern right now is trying to start the protocol from such a weakened state at the same time, I don't want to spend 8 years again to get back to 60-70% functional.  

First question, I have seen reference to feeding tube scenarios in several places and wondering if that is metaphoric or am I missing something?

2) I just got back results from 35 tubes of blood and besides might having various HV infections (CMV, EBV, HSV1, and coxsackie - I always have a hard time at understanding the results) as well as some markers that indicate WDB (Water Damaged Building/ Biotoxin illness) exposure low such as low VEGF and leptin and high MMP9.  So, I am also looking at the Shoemaker mold protocol which recommends a no Amylose diet along with high dose fish oil to help improve those issues but that follows some other steps.  This protocol seems to stress eating Amylose foods (oat bran for example).   Have you had any experience with these markers and do you have any recommendations?

3) I noticed that Coxsackie might be an issue and wondered if you have looked at Equilibrant ?

More questions will follow as energy and reading and time permit.  

Thanks for the feedback.

Questions and Answers / Re: Combining antiviral/antimalarial treatment?
« on: December 24, 2021, 03:17:53 PM »

Having dealt with ME/CFS for too f*cking long, I have tried most things and worked with some of the best doctors.  If you are going to use anti-virals, then I suggest Famvir which has a better safety profile and fewer side effects and has helped but not cured people especially if you are aware of an EBV infection.  The main key based on my past experiences is somehow getting the immune system back in gear which happened with me with an FMT.  However, finding a healthy person who will agree can be a challenging process especially if you are house bound.  Since I recently went from my best CFS health to the worst in 10 years over the last 2 months, I am investigating Joshua's protocol as it seems to imply boosting immune activity while reducing viral load.  

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