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Member Blogs / Re: GodLovesATriers Blog (Diagnosed with ME, 2016)
« on: October 25, 2021, 05:08:23 AM »
Not sure what day it is but I've been on the protocol for about 6 months.
It's taken me from 60% to 80% hummingbird scale.
In summary I no longer take lions mane due to terrible dysphoria, loss of libido etc. This resolved upon stopping it.
I take b vitamins occasionally, but not all the time, as my body got to the point where taking them caused me terrible brain fog and not taking them made the brain fog better. I have discovered an inverse relationship between glutathione nad vitamin b12. If b12 serum is high, glutathione will use up b12 in cells and lower the serum reading. This means if you take b12 and it causes brainfog and extreme tiredness (as it did me later in the protocol) taking glutathione to lower a high b12 serum count will lower it and then when you take b12 again you'll only get the benefits (more energy, less fatigue, sharper thinking).
I removed egcg because it makes me a bit hyper, impatient and sometimes angry. It also was making me feel sometimes very tired, but that might have been a coincidence. I did attempt to do more than I Was able to (push) in July 2021 which didn't work. At the time I was taking high doses of egcg, which did not block PEM or fatigue fully and my stamina levels were overall quite low.
Every time I've had a vaccine it's caused my immune system to weaken heavily, causing return of some symptoms, but mainly dropping 10% on the hummingbird scale each time. Dose 2 astrazeneca I lost the use of my legs for about a week.
I recently added nattokinase to my protocol.
To summarise I no longer take b vitamins every day, egcg every day and don't take lions mane at all. I've never taken creatine, I only occasionally take glutathione. I still pace and am very careful not to overdo it.
Prior to the flu jab I was doing 40 minute walks 3x a week with a 50 to 60 minute walk once every fortnight. I hope to be back to a decent level of functioning in the next few months, although I am due to get a covid19 booster so I doubt that will happen.
I also take 2g of NAC 3x a day, which is higher than many people take. I believe this to be beneficial.
And I take 3x magnesium types malate, ascorbate and biglycinate in small doses 3x a day too.
It's taken me from 60% to 80% hummingbird scale.
In summary I no longer take lions mane due to terrible dysphoria, loss of libido etc. This resolved upon stopping it.
I take b vitamins occasionally, but not all the time, as my body got to the point where taking them caused me terrible brain fog and not taking them made the brain fog better. I have discovered an inverse relationship between glutathione nad vitamin b12. If b12 serum is high, glutathione will use up b12 in cells and lower the serum reading. This means if you take b12 and it causes brainfog and extreme tiredness (as it did me later in the protocol) taking glutathione to lower a high b12 serum count will lower it and then when you take b12 again you'll only get the benefits (more energy, less fatigue, sharper thinking).
I removed egcg because it makes me a bit hyper, impatient and sometimes angry. It also was making me feel sometimes very tired, but that might have been a coincidence. I did attempt to do more than I Was able to (push) in July 2021 which didn't work. At the time I was taking high doses of egcg, which did not block PEM or fatigue fully and my stamina levels were overall quite low.
Every time I've had a vaccine it's caused my immune system to weaken heavily, causing return of some symptoms, but mainly dropping 10% on the hummingbird scale each time. Dose 2 astrazeneca I lost the use of my legs for about a week.
I recently added nattokinase to my protocol.
To summarise I no longer take b vitamins every day, egcg every day and don't take lions mane at all. I've never taken creatine, I only occasionally take glutathione. I still pace and am very careful not to overdo it.
Prior to the flu jab I was doing 40 minute walks 3x a week with a 50 to 60 minute walk once every fortnight. I hope to be back to a decent level of functioning in the next few months, although I am due to get a covid19 booster so I doubt that will happen.
I also take 2g of NAC 3x a day, which is higher than many people take. I believe this to be beneficial.
And I take 3x magnesium types malate, ascorbate and biglycinate in small doses 3x a day too.